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Learning disabilities - work programme

What is the programme and its aims?
The programme enables people with learning disabilities to access healthcare and social support which can respond to the individual needs of patients.

Its aims are:
  • to respond to the service improvements identified through the joint health and social care self assessment
  • to co-design and plan support across the region in response to the needs of people with learning disabilities and family carers
  • to facilitate and promote the co-production of support for people with learning disabilities – supporting people's lives not services

Why is the programme required?
The Confidential Inquiry into the Premature Deaths of People with Learning Disabilities found that the life expectancy of people with learning disabilities is between 13 and 20 years lower than the general population. As in the general population the main underlying causes of death were heart and circulatory disorders, cancer and respiratory infection being the final event leading to death.

The Learning Disabilities Self Assessment Framework is an action arising out of the 2012 Winterbourne View Transforming Care review and concordat. The concordat included a number of commitments from a wide range of stakeholders including NHS England, ADASS and the Care Quality Commission which aimed to ensure that people with learning disabilities would not in be hospital longer than they needed to be, not admitted to an inpatient setting unless absolutely necessary and could expect the same level of health care as the rest of the population. Local authorities and clinical commissioning groups are expected to work together with people with learning disabilities and family carers to assess how well people are being supported to be healthy, stay safe and live well.

Who are the partners?

  • people with learning disabilities
  • family carers
  • ADASS
  • local authorities
  • clinical commissioning groups
  • health providers
  • social care providers

How are we making a difference?

  • By enabling people with a learning disability to access general healthcare services and live a life like any other
  • Supporting areas to tackle common challenges such as accessing screening services or develop good quality community based provision for people with complex needs
  • Bringing together partners to develop and promote outcome focused, person centred, cost effective support

What's next?

  • Work with stakeholders to identify tools and resources which would support the region to tackle health inequalities
  • Support the region to track and monitor uptake of health checks
  • Develop a list of locally developed commissioning for quality and innovation schemes to support local areas to develop contract arrangements to increase uptake
  • Work with local areas to identify gaps in provision
  • Understand spend on learning disability across the region
  • Develop links with providers to develop models of support
  • Produce a regional market position statement which reflects the needs of people with learning disabilities and the type of support they want
Who to contact for further information?
This email address is being protected from spambots. You need JavaScript enabled to view it., Regional Learning Disability Officer