Electronic care palliative care coordination systems

What is the programme and its aims?
Electronic palliative care coordination systems enable health care teams to record and share people’s preferences for end of life care. The ultimate aim is to improve coordination of care so that end of life wishes can be met, and more people are able to die in the place of their choosing, with their favoured package of care.

There is no national electronic palliative care coordination system and each health community is considering the most appropriate system to support their populations. The local leadership group provides a forum to share learning and best practice; it is understood that adopting the minimum number of approaches is likely to support the health system to deliver equal access for patients.

Why is the programme required?
Electronic palliative care coordination systems, used effectively, improve a patient’s quality of care and enable their needs to be met, particularly in where they wish to die. Currently, over 70% of people express a wish to die at home yet only 43% achieve this. Electronic palliative care coordination systems support health and social care teams to support the patient in the most appropriate way to meet their needs. This may mean, for example, fewer admissions to hospital and more care being delivered in the patient’s home.

Other benefits of electronic palliative care coordination systems include the integration of service provision, avoiding the duplication of difficult conversations for patients and their families and carers, and providing a useful guide and prompt for clinicians.

Who are the partners?
Each health community has established a plan to identify the most appropriate IT solution to support electronic palliative care coordination systems delivery. This is a very small part of the overall effort required to bring the multiple parts of the health and social care system together to support the patient and their families and carers.

Multi-disciplinary teams in both Nottinghamshire and Lincolnshire are making good progress with their electronic palliative care coordination systems programmes and the local leadership group provides a forum for other health communities to learn from their experiences.

How are we making a difference?
We held an event in October 2014 to which we invited all local health communities. We heard from colleagues around the country who have successfully established EPaCCS in their communities. They shared their learning and gave good advice. A summary of the meeting can be found here.

In addition to facilitating the sharing of learning across health communities, we are also providing a link between local teams and the national end of life care team as they monitor the spread of electronic palliative care coordination systems across England and undertake an evaluation of the various approaches being used.

What’s next?
We will continue to facilitate the sharing of local learning and support the evaluation of local approaches to support decision making.

What are the key resources?

Who to contact for further information?
For more details, please contact This email address is being protected from spambots. You need JavaScript enabled to view it..