Benchmarking and measures

What is the programme and its aims?
A task and finish group was formed to consider a benchmarking exercise for the region to highlight any unwarranted variations and to identify more specific work streams that the wider local leadership group may explore as an East Midlands collaborative to improve palliative and end of life care.

NHS IQ had already developed some guidance that covers what is measured currently which was taken as the starting point for a benchmarking report. From the available raw data East Midlands specific data was extracted and presented in a pdfreport.

This report acts as a starting point: it highlights areas of good practice and areas where improvement is needed.

Why is the programme required?
Whilst there are numerous sources of information available, most reports are at a national level and making local comparisons can be difficult.

Our aim is to bring together the local data from across a range of reports that look at different areas of palliative and end of life care to provide useful information to providers and commissioners that encourages the identification of areas for improvement as well as sharing best practice.

We would like to encourage organisations to reflect on the data and to consider the actions required.

In addition to the nationally available reports, we are working with local healthcare organisations to identify further data sources that will enhance the report.

Latest news
The National Survey of Bereaved People (VOICES) 2015 survey results are now available. Whilst the data is not available to extract local information from, the main points identified in the analysis are:

  • 3 out of 4 bereaved people (75%) rate the overall quality of end of life care for their relative as outstanding, excellent or good; 1 out of 10 (10%) rated care as poor.
  • Overall quality of care for females was rated significantly higher than males with 44% of respondents rating the care as outstanding or excellent compared with 39% for males.
  • 7 out of 10 people (69%) rated hospital care as outstanding, excellent or good which is significantly lower compared with care homes (82%), hospice care (79%) or care at home (79%).
  • Ratings of fair or poor quality of care are significantly higher for those living in the most deprived areas (29%) compared with the least deprived areas (22%).
  • 1 out of 3 (33%) reported that the hospital services did not work well together with GP and other services outside the hospital.
  • 3 out of 4 bereaved people (75%) agreed that the patient’s nutritional needs were met in the last 2 days of life, 1 out of 8 (13%) disagreed that the patient had support to eat or receive nutrition.
  • More than 3 out of 4 bereaved people (78%) agreed that the patient had support to drink or receive fluid in the last 2 days of life, almost 1 out of 8 (12%) disagreed that the patient had support to drink or receive fluid.
  • More than 5 out of 6 bereaved people (86%) understood the information provided by health care professionals, but 1 out of 6 (16%) said they did not have time to ask questions to health care professionals.
  • Almost 3 out of 4 (74%) respondents felt hospital was the right place for the patient to die, despite only 3% of all respondents stating patients wanted to die in hospital.
The full report is available here.

Who to contact for further information?
For more details, please contact This email address is being protected from spambots. You need JavaScript enabled to view it.