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Specialised children's services

What is the programme and its aims?
The East Midlands children’s and young people’s population is served by two tertiary level children’s hospitals based thirty miles apart in Leicester and Nottingham. These centres provide specialised children’s care for children with complex medical conditions and surgical procedures, including cancer, neurological/neurosurgical conditions, cardiac and renal disease. These centres also provide intensive care for neonates, children and young people. Both centres work closely with their surrounding district general hospital secondary care services. The aims of this work programme are to support collaborative working between these tertiary centres and facilitate sustainability, and improvement, delivering high quality pathways across in the East Midlands. The focus of this programme is on transport of the critically ill child, to review and propose models of delivery for paediatric radiology across the East Midlands and to develop shared/networked pathways for specific paediatric specialties.

Why is the programme required?
In the long term there is a need to consider the resilience and sustainability of tertiary and specialised services for children within the East Midlands given the current disposition of services. Unlike many other areas across the UK services are provided by two different large acute trusts each with a medium sized children’s hospital offering selected specialised services. Therefore close collaboration between these centres is essential to support ongoing delivery of most of the specialised children’s services within the East Midlands maintaining care as close to home as possible.

Who are the partners?
  • Provider services
  • Clinical commissioning groups
  • Specialised services commissioners

How are we making a difference?
Working with the support of the senior management and clinical teams from both tertiary centres monthly joint working meetings were set up and hosted by the Clinical Network. This group has now evolved into the Nottingham University Hospitals Trust and University Hospitals Leicester Children’s Services Collaborative (NUCSC) Steering Group, to lead on the identification, establishment and oversight of strategic collaborations between children’s services which improve the quality, patient experience, sustainability and cost effectiveness of children’s services provided by one or both organisations.

We employed a service improvement lead to work jointly between the two tertiary centres in the region, leading on the paediatric critical care transport project and the development of an East Midlands specialised children’s health services website which will provide service, referral and signposting information for professional staff in district general hospitals, and in primary care.

The East Midlands specialised children’s health services website was launched in early 2016.

What’s next?
The delivery of a joint business case with an agreed preferred model for paediatric critical care transport services, linking to the specialised services commissioners, and support for initial implementation when agreed.

What are the key resources?

Who to contact for further information?
This email address is being protected from spambots. You need JavaScript enabled to view it., Maternity and Children's Project Officer