August 2016 Newsletter

Welcome to the Cancer Clinical Network’s summer newsletter.  You will find an update on cancer developments and see some of the important work that is being progressed across the East Midlands. 

Let us know what is happening in your area by contacting a member of the  team - you could be in our next newsletter!

Louise and Steve Ryder
Dr Steve Ryder, Cancer Clinical Director and Louise Walker, Head of Network

Want to know how to reach us?  See our Cancer Team's pdfWho's Who and contact list.              
The cancer network section of the East Midlands Clinical Networks & Senate website is now live with Expert Clinical Advisory Group key information.  We hope you find this new feature useful and informative.

The chemotherapy algorithms and regimens are now available at For any queries, please contact This email address is being protected from spambots. You need JavaScript enabled to view it., Specialist Oncology Pharmacist.

New Appointments

Sherwood Forest NHS Hospital Trust - new Cancer Leads
Head of Cancer Services: Adam Littler
Macmillan Project Lead: Mandy Edwards
Assistant Cancer Services Manager: Samantha Owens

University Hospitals of Leicester NHS Trust – new Cancer Leads
Deputy Head of Performance – Cancer / Cancer Centre Manager: Sarah Morley
Consultant Radiologist, Lead Cancer Clinician: Daniel Barnes

Cancer Research UK – New Facilitators for East Midlands
Cancer Research UK (CRUK) has appointed Tracy Mann as the new Facilitator Manager for the East Midlands. Tracy is supported by five recently appointed Facilitators who have commenced roles in our region as part of CRUK's Health Professional Engagement Programme:
Jonathan Stevens
Isobel Duckworth
Adam Williams
Helen Hill
Sophia Baker

Read more ...

Be Clear on Cancer Campaign
The Be Clear on Cancer Campaign will run until October 2016 and encourages anyone with a persistent cough, or who gets out of breath doing things they’re used to doing, to seek medical advice.

For further information contact: This email address is being protected from spambots. You need JavaScript enabled to view it.

Cancer Alliances Update

The Clinical Network has previously updated on the formation of Cancer Alliances for 2016 - mandated by NHS England.

Proposals have been submitted and the footprint will be agreed imminently. Our proposal was to establish a region-wide Alliance co-terminus with the East Midlands boundaries/Sustainable Transformation Plan (STP) Footprint/s.

The Clinical Network will be supporting the region with implementation of its Alliance. It is expected that the Alliance Lead/Chair and organisational representatives will be agreed in the upcoming weeks, with an inaugural meeting taking place in the Autumn. It is expected that each Alliance will have a draft Action Plan in place - the transformational change needed to achieve world-class cancer outcomes, as set out in the Cancer Taskforce Strategy - later in the Autumn.

Please look out for further updates as this agenda gains momentum in the forthcoming weeks.

For further information contact: This email address is being protected from spambots. You need JavaScript enabled to view it.

Commissioning for Value "Focus Packs" from the Right Care programme

NHS Right Care has produced four more Commissioning for Value “focus packs” on cancer and tumours, mental health and dementia, maternity and early years and musculoskeletal and trauma. The packs have been produced for every CCG in England and support commissioners to identify the best opportunities for improving value for their populations. The content has been informed by colleagues from NHS England, Public Health England, clinical networks and the third sector.

Recovery Package - Commissioning person centred care for people affected by cancer
NHS England have published guidance which is intended to support commissioners and clinical networks to ensure every person affected by cancer will have access to the Recovery Package and stratified follow-up pathways by 2020 (specifically breast, colorectal and prostate), as set out in the cancer strategy. It describes the actions required to deliver this including checklists for developing service specifications, practical examples and templates to use and adapt locally.

Review of Informed Choice for Cancer Registrations
Cancer Research UK and Macmillan Cancer Support have reviewed how cancer patients in England could be better informed about the use of their data in cancer registration, and how they can choose whether their data is included.  The review is expected to help inform an important decision by the government about how cancer patients can choose whether their data is included in the cancer registry. The review ran until July 2016, followed by a report to government. Findings are expected to be published by September 2016.

NICE NG12 Guidelines
Dr Victoria Cogger, Macmillan GP Facilitator for Southern Derbyshire CCG, has completed an excellent piece of work, summarising to a 2 page A4 document the Nice NG12 Guidelines. The purpose of which is to help GPs, students, and junior doctors to access and understand easily the information in a summary account. The Network has endorsed this work, believing it will help GPs to very quickly access this information, whether available on their desk or within their bags when visiting. The network would recommend sharing and adopting this document as widely as possible believing it to be a “good practice” piece of work.              
Julie's Blog - 'these boots are made for walking'
Julie's blog provides an invaluable insight into one patient's cancer journey. As one of the East Midlands Cancer Clinical Network's patient representatives, Julie Wolfarth's blog on her current cancer pathway should not be missed.

National Cancer Patient Experience Survey 2015
The national results of 2015 Cancer Patient Experience Survey were published on the Quality Health website on 7June 2016, with the Trust and CCG results available on 5 July 2016.

Patients benefiting from innovative treatment for advanced brain tumours treatment set to double
The numbers of patients receiving innovative treatment for brain tumours will more than double over the next three years as a concrete step towards the implementation of NHS England’s cancer strategy. NHS England has announced the award of new contracts for stereotactic radiosurgery and radiotherapy (SRS/SRT) – specialist forms of radiotherapy that can be used to treat patients with intracranial conditions, such as benign and malignant brain tumours. More than 6,200 patients a year are expected to benefit from these services by 2018/19, compared to just over 2,400 in 2014/15.

Race for Life (Cancer Research UK)
Louise Walker, Head of Cancer Clinical Network, East Midlands Clinical Networks took part in the Race for Life 5k run on the 3 July. “I just felt that this was something that I should do and would also improve my lifestyle choices to get a bit fitter!” Louise was runner 295 pictured below. Supporting Louise is easy, just click on the Just Giving page.

IMG 1977 Louise Walker Race for Life
               Louise Walker third from left              

Bowel Cancer – New Screening Test to be offered to all men and women aged 60 to 74

A new bowel cancer home testing kit will be rolled out across England. The Faecal Immonochemical Test (FIT) tests for hidden blood in stool samples, which can be an early sign of bowel cancer.

Following a successful pilot involving 40,000 people, the UK National Screening Committee recommended the test should be rolled out nationally and offered to all men and women aged 60 to 74, every 2 years.              
East Midlands Clinical Network Director - Cancer
Do you have significant clinical leadership experience in the Cancer field? Would you enjoy leading and influencing cancer service transformation within and across local health systems? Interested...... then read on!

NHS England East Midlands Clinical Network for Cancer has an exciting opportunity for a Clinical Director, two sessions per week.  The work of Clinical Networks is key to engaging with the clinical community in improving health outcomes. Clinical engagement is vital to making significant progress on key health issues as well as supporting the transformation of services in the NHS.

For an informal discussion please contact either:
This email address is being protected from spambots. You need JavaScript enabled to view it., Cancer Clinical Director on 07979 542460
This email address is being protected from spambots. You need JavaScript enabled to view it., Head of Cancer Clinical Network on 07795 252514              
MDC pilot sites summary and what they are doing

Our programme of work is supporting 6 test sites across the region aiming to pilot a new diagnostic pathway for patients with ‘non-specific but concerning symptoms’ – a pathway which incorporates a Multidisciplinary Diagnostic Centre (MDC).

Patients who display symptoms or a combination of ‘non-specific’ symptoms that indicate several different cancers currently don’t have an effective referral pathway. So, as a result, go back and forth between primary and secondary care, present to emergency services or fall through the gap – which leads to delays to diagnosis and subsequently poor outcomes.

Read more about the pdfregional and national work or for further information contact: This email address is being protected from spambots. You need JavaScript enabled to view it.              
The following meetings are planned for the summer/autumn:
  • Acute Oncology Service ECAG - 9 September 2016
  • East Midlands Joint Diagnostics Working Group 15 September 2016
  • Breast ECAG - 16 September 2016
  • ECAG Lead & EMCN Cancer Team Meeting – 20 September 2016
  • Commissioning Forum - 20 September 2016
  • Brain & CNS ECAG - 28 September 2016
  • Colorectal ECAG - 3 October 2016
  • Lung & Mesothelioma ECAG - 5 October 2016
  • East Midlands Joint Diagnostics Working Group - 12 October 2016
  • Sarcoma ECAG - 13 October 2016
For further details, please contact This email address is being protected from spambots. You need JavaScript enabled to view it.              
Cancer Cascade Programme - 24 May 2016 - Reading
The Cancer Cascade programmes are an initiative of the Royal College of General Practitioners (RCGP) and Cancer Research UK (CRUK). They provide a forum for information sharing, networking and generation of practical ideas about how to implement cancer quality improvement activities within a primary care setting. The pdfpost event information pack is now available.              

Thanks to our GP Lead, Dr Pawan Randev for these recommended resources:

Community Pharmacist Cancer Education
The Learning Pharmacy is an online learning environment which offers interactive learning for community pharmacy that is fun, free and easy to access.

The Centre for Pharmacy Post Graduate Education – provides a distance learning programme which help raise awareness and understanding of risk factors/early signs and symptoms.

Exercise and cancer – starting with chemo
An Australian programme exploring how targeted exercise can help fight cancer.

Diet and Cancer - Clinical studies evaluating lifestyle choices in cancer patients
Professor Robert Thomas, Consultant Oncologist at Addenbrooke’s and Bedford Hospitals reviews evidence concerning the relationship between lifestyle modifications and cancer.  Filmed on 12 May 2015 at the Maggie’s, West London.

Preventing bowel cancer
Public Health England (PHE) wants to see fewer people develop bowel cancer and encourage more eligible people to come forward for screening, to achieve an uptake target of 75%. This resource highlights what we know about how bowel cancer affects people, with an aim to help achieve these goals.

The British Journal of General Practitioners article Managing the consequences of cancer in primary care by David Linden, Pauline Love, Emily Bowman, Jane Maher, concludes that the role of primary care in cancer follow-up is still being defined but it is clear that managing the consequences of cancer and its treatment will be an increasing part of the GP workload. The RCGP Macmillan toolkit brings together existing best practice, clinical guidance, and patient resources however further education, training, and resources are needed to increase knowledge and awareness of this under-recognised issue.

Stratified follow up of colorectal cancer with long term follow up

A working model for secondary care capacity and follow up of cancers. The paper and presentation were shared at the London Cancer Alliance Clinical Forum in November 2015.